Retina Forum - linki do organizacji RP

Lista kontaktowa do
organizacji pacjentów
z Retinitis Pigmentosa

Przewodniczący Międzynarodowej Organizacji
Pacjentów z Retinitis Pigmentosa

President Retina International
Christina Fasser
Langstrasse 120
CH-8004 Zürich
Switzerland
Tel: ++41 1 291 18 72
Fax: ++41 1 291 18 50
E-mail: cfasser@e-link.ch
Web: www.retina-international.org

Afryka Południowa
Retinal Preservation Foundation of South Africa
Mr. Gordon Cousins
P.O. Box 2395
Primrose 1416
South Africa
Tel: ++27 11 825 11 33
Fax: ++27 11 825 39 48
E-mail: cousi@global.co.za

Arabia Saudyjska
Hatim Abuzinadah
P.O. Box 419
Jeddaah 21 411
Saudi Arabia
Tel: ++966 2 652 8294 / 651 6321
Fax: ++966 2 653 0368

Argentyna
Senor Horacio Vicente Lopez
Asociación Argentina de Distrofia Retinales
Maipú 898
1646 San Fernando
Prov. Buenos Aires
Argentina
Tel: ++541 744 15 91
Fax: ++541 744 14 00
E-mail: carlino@server1.sminter.com.ar

Australia
June Ashmore
Australian RP Association
9 Douglas Place
Spence ACT 2615
Australia
Tel: ++61 2 625 821 50
Fax: ++61 2 625 894 02
E-mail: ashmore@ozemail.com.au

Austria
Liliana Prerowsky
Österr. Retinitis Pigmentosa Forschungsprojekt (ÖRPF)
Sellenygasse 2-4/17
A-1020 Wien
Tel. and Fax: 0043 1 728 92 94

Belgia
Mrs. Leni Van den Brande
Belgian Retinitis Pigmentosa Association
Van Amstelstraat, 30
B-2100 Deurne
Belgium
Tel: ++32 3 324 17 89

Brazylia
Grupo de Retinitis Pigmentosa do Rio de Janeiro
Maria Antonieta P. Leopoldi
Rua Senador Vergueiro 159 ap. 801
22.230.000 Rio de Janeiro RJ
Brasil
Tel./Fax ++5521 553 19 77
E-mail: jlbraga@unisys.com.br

Chiny
Ms. Yang Jia
Dept. of English
Graduate School
Academia Sinica
Box 3908
Beijing
100039
CHINA
E-mail: yangrui@public2.bta.net.cn

Cypr
Haralabous Pampos
R.P. Society Cyprus
Pefkou 32 A
Pano Lakatamia
Nikosia-Cyprus
Tel: ++35 72 37 13 39

Dania
Poul Lüneborg
The Danish Association of the Blind
The RP Group
Thorasvej 35
DK-2400 Kobenhavn N.V.
Denmark
Tel: ++45 31 19 88 44
Fax: ++45 38 33 11 37
E-mail: dk-blind@inet.uni-c.dk

Egipt
Girges Azer
16 Ahmed Bassyoni Street
Hadaik L-Kobba
Kairo
Egypt
Tel: ++202 83 00 01

Estonia
Anne-Kersti Nurk
Estonian Blind Association
Vene 7
EE0101 Tallinn
Estonia
Tel: ++372 44 63 17
Tel: ++372 49 97 79

Filipiny
Prof. Froilan P. Inocencio M.D.
Room 321
Medical Centre Manila
Taft Avenue
Manila
Philippines 1000
Fax: ++632 631 3877

Finlandia
Seppo Jurvanen
Finnish Retinitis Association
Keiteleentie 12
SF-00550 Helsinki
Finland
Tel: ++358-0-730 424
other ++358 0 3960 4680 (Maija Lindroos)
Fax: ++358-0-3960 4688 (Maija Lindroos)

Francja
Retina France - AFRP
Mr. Jean-Jacques Frayssinet
Président Association
Association Française de RP (AFRP)
B.P. 62
F-31771 Colomiers Cédex
France
Tel: ++33 561 30 20 50
Fax: ++33 561 78 91 00
E-mail: info@retina-france.asso.fr
WEB: www.retina-france.asso.fr/

Grecja
Hellenic Retinitis Pigmentosa Society
President Stratis Chadzicharalabous
P.O. Box 8159
PC 10010
Athens
Greece
Tel: ++30 1 9524 548 Home
Tel: ++30 1 5235 441 Office
Fax: ++30 3 5234 559

Hiszpania
F.A.A.R.P.E.E.
Federacion de asociaciones
de afectados por retinosis
pigmentaria del estado espanol
Luis Palacios
C/.Montera, 32 5o Dpto. 2
28013 Madrid
Spain
Tel./Fax: ++34 1 521 60 84
E-mail: luis.palacios@abaforum.es

Holandia
Retinitis Pigmentosa
Vereiniging Nederland (RPVN)
Postbus 11337
NL-1001 GH Amsterdam
Nederland
Tel: ++3120 6417 259
E-mail: rpvn@elnet.nl

Hong Kong
Mr. Kin P. Tsang
Hong Kong Retinitis Pigmentosa Society
P.O. Box 28621
Gloucester Road Post Office
Hong Kong
Tel: ++852 28 87 59 16
E-mail: kptsang@hkrps.org.hk
Web: www.hkrps.org.hk/

Indie
Mr. V. Kalyanaraman
Society of Retinitis Pigmentosa Patients (SORPP)
127, Linghi Chetty Street
Madras 600 001
India
Tel: ++91 44 52 29 622
Fax: ++91 44 58 10 22

Indonezja
Mr. E. Tejopumomo
Jl. Melati Utara 7a
Semarang
Indonesia

Ireland
Retinitis Pigmentosa Ireland-Fighting Blindness
Michael Griffith
6 Belvedere Place
Dublin 1
Ireland
Tel: ++353 1 855 9330
Fax: ++353 1 855 9331
E-mail: rpi@iol.ie

Japonia
Prof. Emiko Adachi-Usami
Dept. of Ophthalmology
Chiba University School of Medicine
1-8-1 Inohana
Chou-Ku
Chiba 260
Japan
Tel: ++81 43 222 0209
Fax: ++81 43 227 1810
E-mail: emiko@med.m.chiba-u.ac.jp

Yuka Onozuka
4-6-9-201 Iko Adachi-ku
Tokyo
Japan 121
Tel. and Fax: ++81 3 5691 1492
E-mail: RXK15266@niftyserve.or.jp

Kanada
Sharon M. Colle
The RP Research Foundation
Fighting Blindness
36 Toronto Street
Suite 910
Toronto, Ont. M5C 2C5
Tel: ++1 416 360 4200
Fax: ++1 416 360 0060

Kostaryka
Fundacion Costarricense de Retinosis Pigmentaria
Edgar Quesada Sancho
Apartado 312-2010
San Jose - Costa Rica C.A.
Tel., Fax ++506 53 99 24

Litwa
Lithuanian RP Association
Romualdas Kudaras
Savanoriu 204-59
Kaunas 3009
Lithuania
Tel: ++370 7 732 808
Fax: ++370 7 730 258
E-mail: Vitas@kttc.vno.soros.lt

Malezja
Mr. Teoh Beng Hian
391 A. Lorong Empat
Ujong Pasir
75050 Malacca
Malaysia

Malta
Mr. Epifanio Vella
Plot 81,
Salvatore Mallia Str.
Siggiewi QRM 12
alta
Tel: ++356 466 294
Fax: ++356 245 397
E-mail: eff.vell@mail.link.net.mt

Meksyk
Ing. Sonia Garcia Gamboa
Asociación Mexicana de la Retinitis Pigmentosa y
enfermedades de la Retina, A.C.
Paris 337 Col. Mirador
C.P. 64040 Monterrey, N.L.
Mexico
Tel: ++528 343 18 88
Fax: ++528 343 18 75
E-mail: jsuarez@email.isnet.com.mx

Niemcy
Dr. R. von Gizycki
Deutsche Retinitis Pigmentosa Vereinigung e.V.
Lutherstr. 4
D-61231 Bad Nauheim
West Germany
Tel: ++49 6032 33550
Fax: ++49 6032 32172
E-mail: 100305.132@compuserve.com
Web: www.pro-retina.de
Frau Gusseck Helma
Erlenweg 9
D-53227 Bonn
Germany
Tel: ++49 2284 64689

Nowa Zelandia
Mrs. June Ombler, President
New Zealand Retinitis Pigmentosa Society (INC.)
207 Forbury Road
St. Clair
Dunedin
New Zealand
Fax: ++64 3 455 4319
E-mail: jombler@rnzfb.org.nz
Correspondence:
New Zealand RP Society (INC.)
Mr. Bryan Jones
P.O. Box 99057
Newmarket Auckland
Auckland, New Zealand
New Zealand
Tel: ++64 9 355 6929
Fax: ++64 9 355 6921
E-mail: bjones@rnzfb.org.nz

Norwegia
Retinitis Pigmentosa foreningen i Norge
Chairmam: Hakon Gisholt
Post-box 65 Bogerud
N-0621 Oslo
Tel: ++47 22 29 86 34 (Hakon Gisholt)
Fax: ++47 22 41 12 13

Pakistan
Pakistan Foundation Fighting Blindness
Zaheer Khalid
255-B, Street # 52,
Sector F-10/4
Islamabad
Pakistan
Tel: ++92 51 290261/290262/290464
Fax: ++92 51 290465
E-mail: hhk%pffb@sdnpk.undp.org

Panama
Retinitis Pigmentosa Association
Dr. Donald Halman
Apartado 1687
Panama 9-A R.P.

Peru
Mario Cardes Ayala
Ariosto Matellini 579
Chorrillos
Lima
Peru

Polska
Mrs M. Pacholec
Polski Zwiazek Niewidomych
Warszawa Konwiktorska 9
Tel: ++635 7652
Fax: ++831 22 71

Rumunia
Dr. C. Siszar Anna
Str. Rozelor 2
4300 Tirgu Mures
Rumania

Salwador
Ruth Rodriguez
GIPRI
Gruppo Independente Por la Rehabilitacion Integral
Apartado Postal CC-1034
San Salvador
El Salvador, America Central

San Domingo
Fundacion Dominicana de Ciegos Inc. FUDCI
Leonardo Mauricio Amparo
c/o Sanchez #40
Bo. 30 De Mayo
Santo Domingo

Szwajcaria
Christina Fasser
Swiss RP Association
Langstrasse 120
CH-8004 Zürich
Switzerland
Tel: ++41 1 291 18 72
Tel: ++41 1 910 76 44 Home
Fax: ++41 1 291 18 50
E-mail: cfasser@e-link.ch
Web: www.rpver.ch/

Szwecja
Svenska RP-Föreningen
Brukarhuset
Box 11054
S-10061 STOCKHOLM
Sweden
Correspondence:
Leif Pehrson
Hjortvägen 20
S-183 40 TÄBY
Sweden
Tel: ++46 8 732 73 00 Home
Tel: ++46 8 790 88 01 Office
Fax: ++46 8 10 24 86
E-mail: leifp@admin.kth.se
Web: www.srpf.a.se/

USA
The Foundation Fighting Blindness
Chairman: Gordon Gund
Delegate: Moira Shea
Executive Plaza 1 Suite 800
11350 McCormick Road
Hunt Valley, MD 21031/1014
USA
Tel: ++1 410 785 1414
Fax: ++1 410 771 94 70
E-mail: 102722.2632@CompuServe.com
Web: www.blindness.org/

Węgry (Budapeszt)
Ildiko Somogyi
Szent Istvan park 35
H-1137 Budapest
Hungary
Tel: ++36 1 1409002
Węgry (Gyula)
Mrs. Holt
For our Sight Foundation
Zsinor Street 8
Town Gyula
Hungary

Wielka Brytania
Mrs. Mary Guest
c/o British RP Society
PO Box 350
Buckingham, MK18 5EL
England
Tel: ++44 1 712 727 774
Fax: ++44 1 712 723 862
E-mail: mary@senseorg.uk
Correspondence:
Mrs. Lynda Cantor
British Retinitis Pigmentosa Society
PO Box 350
Buckingham MK18 5EL
England
Tel: ++44 1 280 860 363
Fax: ++44 1 280 860 515
E-mail: brps@brps.demon.co.uk
Web: www.brps.demon.co.uk/

Włochy (Mediolan)
Marco Bongi
President F.I.A.R.P.
Via Generale dalla Chiesa 20/26
10070 Mappano di Caselle (TO)
Italy
Tel: ++39 119 969 263
Fax: ++39 115 388 84
E-mail: anpv@arpnet.it
R.P. Italia Carlo Parolini
Piazza Quattro Novembre 4
I-20124 Milano
Italy
Tel: ++392 670 708 25
Fax: ++392 670 708 24
E-mail: rpitalia@sgol.it
Włochy (Turyn)
Prof. sa Irene Gentile
Corso Vittorio Emanuele II, 63
10128 Torino
Italia
Tel: ++39 11 535567 / 532683
Fax: ++39 11 518028

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